G-Tube Advice

Q:    I am a mother to a baby who is 6.5 months old, corrected age.  He was born at 29 weeks gestational age.  Because of being on a high level of O2 support for a long period of time, being intubated several times, and experiencing reflux, he has had an aversion to liquids and was not able to learn how to suck on a bottle effectively.  A g-tube was placed before he left the NICU.  He is now fed exclusively through the g-tube, but his speech therapist and I are making progress on his oral acceptance of liquids and solids.  However, his oral mechanics still do not allow him to process more than .1 to .2 ml for each swallow.  He has marked tongue thrusting.

Regarding tools —  at this point we are making use of the Baby Grabber and are using a 1 ml syringe for liquid practice.  We have attempted to use several sippy cups without much success so far.  His speech therapist has not suggested any other tools/devices at this point.  Could you suggest products that we could use for feeding practice, tongue placement/mechanics, and general oral work that will help us work towards g-tube independence?  Our speech therapist cannot provide them, so we are looking to purchase just a few items that will have maximum usage and effect.

A:  Dear parent,

I would recommend doing a gum massage during his g-tube feedings, or having him bite/chew/mouth some chew tools.  You said you have a Baby Grabber® that he enjoys, which would be great to use.  ARK also sells the Beckman Tri-Chew, which is another safe mouthing tool to use.  The ProMini can be used to stroke the sides of the tongue, stimulate the inside of the cheeks, and brush or tap the tongue.  The goal is to provide stimulation to the tongue, lips, cheeks, and gums as if he were eating while being fed via g-tube.

In reference to his tongue thrust, please ask your SLP to explain the difference between a suckle and a suck.  I cannot comment since I cannot actually see what he is doing.  However, all infants have a tongue thrust swallowing pattern which will eventually change as he grows older.

You may try to work on straw drinking with the guidance of your SLP.  We do have several products that can be used to teach straw drinking (the Cip-Kup™, Sip-Tip®, Bear Bottle, etc.).  However, I recommend trying this first: cut a regular straw in half or even smaller.  While holding your finger over one end, dip the other end in his formula or any stage 1 baby food that he enjoys.  Since he has a good strong suck, this may just work.   Hydration and caloric intake as you well know is very important to maintain health and continued growth.

While sippy cups have their place in helping transition between bottle to cup, some SLPs don’t like them because they can promote tongue thrust.  The liquid comes out too fast inside the child’s mouth and he/she uses compensatory tongue movements to manage the overflow.  The mouthpiece can also be too wide and large for the child’s oral cavity size, again creating problems.  If you are going to try zippy cups again, I recommend reading this post first.

Just a note on reflux – I have known parents to take their children off their medication without consulting the pediatrician.  They usually do this between the age of two and three because their child appears to be symptom free.  But then feeding issues begin.  So, please consult with his pediatrician first before doing so, and I know that you will.  You are an investigative parent, who only wants to do the best for your wonderful baby.

Please give me updates as to his progress.  If you have any other questions or concerns, please do not hesitate to contact me.
All the best,
Debbie

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One response to “G-Tube Advice

  1. Roxanna Cardinaletti

    You need to switch therapists ASAP if u want to save your child. It sounds like she is not a feeding therapist in speech therapy. Try the z-vibe. That worked wonders for me! My daughter had a similar problem and the Z-vibe was my miracle!

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